Privacy Statement

Effective October 29, 2012

The International Children’s Heart Foundation (“Baby Heart”) has created this Privacy Policy to
demonstrate our firm commitment to privacy and so that you, as a visitor to babyheart.org (“Web site”), will be aware of the uses made of information that may be generated as a result of you using our Web site.

What information is generated when you visit Babyheart.org

Depending on how you use our Web site, certain types of personal and nonpersonal information
may be generated and collected. For example, you may give us your name or e-mail address
when you complete a registration screen, respond to a questionnaire or submit an e-mail to us.
Any personal information that you provide to us will be used by us primarily to fulfill the stated
objective for which the information was requested or collected (e.g. if information is provided
as a result of you e-mailing us, we will use the information provided, such as e-mail address, to
respond to you).

We will not share your information with any other person or entity outside of ICHF.

Other types of information that may be generated and collected when you use our Web site is
information that we consider non-personal in nature. For example, we may collect the name of
the domain from which you access the Internet (for example, aol.com, if you are connecting
from an America Online account); the date and time you access our site or and the Internet
address of the Web site from which you linked directly to our site. We use this information to
measure the number of visitors to the different sections of our Web site and to help us make
our Web site more useful to visitors.

Use of Cookies

What is a cookie? A cookie is a data file that is created and stored on your computer’s hard drive
when you visit a Web site. The typical purposes of a cookie is to make your use of the Web site
easier and more convenient and to assist the Web site in tracking your use of the site. For
example, a cookie may save the registration information, passwords, purchases or preferences
that you create when using a Web site so you don’t have to reenter this information. Cookies
may also tell the Web site which areas of the site are popular and which aren’t. Cookie
technology is used by most major Web sites and is considered an industry standard for the
Internet.

Our Web site uses cookie technology to verify user information. Also, most Internet browsers
are initially set to accept cookies. If you prefer, you may set your browser so that it refuses
cookies or alerts you when cookies are being created on your hard drive. You should be aware though that by not accepting cookies, you may impair your ability to use certain features or
access password protected areas of web sites.

“Contact Us” Feature

Like most sites on the Internet, our Web site contains a feature that allows you to contact us
with your comments or questions. Not surprisingly, we call this feature “Contact Us.” To use this
feature, there is menu item at the top of each page on our Web site which you can click onto.
When you do click this link, a screen will prompt you to provide us with certain information,
such as your name and email address.

The information collected through the “Contact Us” feature is used to investigate and respond
to your inquiries. If you are a volunteer, we may also use the information you provide to update
our volunteer records.

Links to Other Sites

In many areas of our Web site, we have included links to other Internet sites which we feel add
to or improve the quality of our Web site. While we hope you find these links helpful, we cannot
assume responsibility for the privacy practices or the content of any linked site. Therefore, we
encourage you to investigate and determine the privacy policy and practices of any linked site
prior to providing information to the linked site.

Surveys

We may from time to time create and use surveys on our Web site. Most surveys are simple
“click box” surveys where you click a box on the screen to indicate your response. However, we
may from time to time ask you for your name, email address or demographic information. If a
survey does ask you this information, we will use the information to complete the survey,
compile statistics and update records.

Contests

We may from time to time run contests on our Web site. If our contests require you to provide
personal or demographic information, we will use this information primarily to complete the
contest and update records.

Forums

From time to time a discussion forum, bulletin board, blog, chat area, news group, community,
or other feature designed so that Users may upload data and images or communicate with
others (“Forum”) may be made available to Users on this Site. Baby Heart, in its sole discretion,
reserves the right to review, control or edit any text, data, images, files, or other materials that
may be uploaded, posted or submitted in any Forum (“Submissions”) as well as the right to
refuse to post any such Submission. All Submissions are subject to the Terms of Use. Please
remember that any information you disclose on these types of features will be accessible to the public and you should exercise caution prior to disclosing any personal information on these
features.

DMCA Copyright Notice

Baby Heart will respond to notices of alleged infringement that comply with the Digital
Millennium Copyright Act (the text of which can be found at the U.S. Copyright Office
website, www.copyright.gov/) and other applicable intellectual property laws. A response may
include removing or disabling access to material claimed to be the subject of infringing activity.
To file a notice of infringement with us, you must provide a written communication (by fax or
regular mail) that sets forth the items specified below. Please note that you will be liable for
damages (including costs and attorneys’ fees) if you materially misrepresent that a product or
activity is infringing your copyrights. Accordingly, if you are not sure whether certain material
of yours is protected by copyright laws, we suggest that you first contact an attorney. To
expedite our ability to process your request, please use the following format:

  • Identify in sufficient detail the copyrighted work that you believe has been infringed.
    For example, “The copyrighted work at issue is the text that appears
    on www.babyheart.org/______”
  • Identify the material that you claim is infringing the copyrighted work listed in item
    #1 above.
  • Provide information reasonably sufficient to permit us to contact you (an email
    address is preferred).
  • Provide information, if possible, sufficient to permit us to notify the owner or
    administrator of the web page that allegedly contains infringing material (an email
    address is preferred).
  • Include the following statement: “I have a good-faith belief that use of the
    copyrighted materials described above on the allegedly infringing web pages is not
    authorized by the copyright owner, its agent, or the law.”
  • Include the following statement: “I swear, under penalty of perjury, that the
    information in the notification is accurate and that I am the copyright owner or am
    authorized to act on behalf of the owner of an exclusive right that is allegedly
    infringed.”
  • Sign the paper.

Send the written communication to:
International Children’s Heart Foundation
1750 Madison Ave, Suite 500
Memphis, Tennessee 38104
Terry Carter, Executive Director

Required by Law

We may disclose information provided by you if we are legally required to do so, such as by
court order or subpoena.

Security

We have adopted what we consider to be reasonable security measures to protect against the
loss, theft, misuse and alteration of information collected through our Web site. For optimum
security measures we utilize 256 bit SSL Encryption. However, if you are concerned about the
security of the Internet or our Web site, we suggest that you not provide this information.

Corrections/Updates

If you are a member and there is information about you on our Web site which needs to be
corrected or updated, please feel free to email us or write us at 1750 Madison Ave, Suite 500
Memphis, Tennessee 38104 , Attn: Web Developer.

Contacting our Web site

If you have any questions about this Privacy Policy, the practices of our Web site, your dealings
with our Web site, or anyone who desires to be removed from future communications please
feel free to email us or write us at 1750 Madison Ave, Suite 500 Memphis, Tennessee 38104,
Attn: Web Developer.

Changes to Privacy Policy Statement

With the ever-changing environment of the Internet and to maintain our ability to improve the
quality and safety of our Web site, we reserve the right to change this Privacy Policy at any time.
In the event we make any material changes to our Privacy Policy, we will notify you by updating
the Policy’s Effective Date and indicating the previous effective date. As you use our Web site,
we encourage you to periodically check back with this Privacy Policy for changes that we may
make. Your continued use of our Web site will constitute your agreement to any changes we
make and if you do not agree with a change, please refrain from using our Web site.

Thank you!

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