Privacy Statement

Effective October 29, 2012

The International Children’s Heart Foundation (“Baby Heart”) has created this Privacy Policy to
demonstrate our firm commitment to privacy and so that you, as a visitor to babyheart.org (“Website”),
will be aware of the uses made of information that may be generated as a result of you using our website.

What information is generated when you visit Babyheart.org

Depending on how you use our website, certain types of personal and nonpersonal information
may be generated and collected. For example, you may give us your name or email address
when you complete a registration screen, respond to a questionnaire or submit an email to us.
Any personal information that you provide to us will be used by us primarily to fulfill the stated
objective for which the information was requested or collected (e.g. if information is provided
as a result of you emailing us, we will use the information provided, such as email address, to
respond to you).

We will not share your information with any other person or entity outside of ICHF.

Other types of information that may be generated and collected when you use our website is
information that we consider non-personal in nature. For example, we may collect the name of
the domain from which you access the Internet; the date and time you access our site or and the Internet
address of the website from which you linked directly to our site. We use this information to
measure the number of visitors to the different sections of our website and to help us make
our website more useful to visitors.

Use of Cookies

What is a cookie? A cookie is a data file that is created and stored on your computer’s hard drive
when you visit a website. The typical purposes of a cookie is to make your use of the website
easier and more convenient and to assist the website in tracking your use of the site. For
example, a cookie may save the registration information, passwords, purchases or preferences
that you create when using a website so you don’t have to reenter this information. Cookies
may also tell the website which areas of the site are popular and which aren’t. Cookie
technology is used by most major websites and is considered an industry standard for the
Internet.

Our website uses cookie technology to verify user information. Also, most Internet browsers
are initially set to accept cookies. If you prefer, you may set your browser so that it refuses
cookies or alerts you when cookies are being created on your hard drive. You should be aware,
though, that by not accepting cookies, you may impair your ability to use certain features
or access password-protected areas of websites.

“Contact Us” Feature

Like most sites on the Internet, our website contains a feature that allows you to contact us
with your comments or questions. Not surprisingly, we call this feature “Contact Us.” To use this
feature, there is menu item at the top of each page on our website on which you can click.
When you do click this link, a screen will prompt you to provide us with certain information,
such as your name and email address.

The information collected through the “Contact Us” feature is used to investigate and respond
to your inquiries. If you are a volunteer, we may also use the information you provide to update
our volunteer records.

Links to Other Sites

In many areas of our website, we have included links to other Internet sites which we feel enhance
or improve the quality of our website. While we hope you find these links helpful, we cannot
assume responsibility for the privacy practices or the content of any linked site. Therefore, we
encourage you to investigate and determine the privacy policy and practices of any linked site
prior to providing information to the linked site.

Surveys

Occasionally, we may use surveys on our website. Most surveys are simple “click box” surveys
where you click a box on the screen to indicate your response. However, occasionally we
may ask you for your name, email address or demographic information. If a
survey does ask you this information, we will use the information to complete the survey,
compile statistics and update records.

Contests

We may occasionally run contests on our website. If our contests require you to provide
personal or demographic information, we will use this information primarily to complete the
contest and update records.

Forums

From time to time, a discussion forum, bulletin board, blog, chat area, news group, community,
or other feature designed so that Users may upload data and images or communicate with
others (“Forum”) may be made available to users on this site. Baby Heart, in its sole discretion,
reserves the right to review, control or edit any text, data, images, files, or other materials that
may be uploaded, posted or submitted in any forum (“Submissions”), as well as the right to
refuse to post any such submission. All submissions are subject to the Terms of Use. Please
remember that any information you disclose on these types of features will be accessible
to the public and you should exercise caution prior to disclosing any personal information on these
features.

DMCA Copyright Notice

Baby Heart will respond to notices of alleged infringement that comply with the Digital
Millennium Copyright Act (the text of which can be found at the U.S. Copyright Office
website, www.copyright.gov/) and other applicable intellectual property laws. A response may
include removing or disabling access to material claimed to be the subject of infringing activity.
To file a notice of infringement with us, you must provide a written communication (by fax or
regular mail) that sets forth the items specified below. Please note that you will be liable for
damages (including costs and attorneys’ fees) if you materially misrepresent that a product or
activity is infringing your copyrights. Accordingly, if you are not sure whether certain material
of yours is protected by copyright laws, we suggest that you first contact an attorney. To
expedite our ability to process your request, please use the following format:

  • Identify in sufficient detail the copyrighted work that you believe has been infringed.
    For example, “The copyrighted work at issue is the text that appears
    on www.babyheart.org/______”
  • Identify the material that you claim is infringing the copyrighted work listed in item
    No. 1 above.
  • Provide information reasonably sufficient to permit us to contact you (an email
    address is preferred).
  • Provide information, if possible, sufficient to permit us to notify the owner or
    administrator of the web page that allegedly contains infringing material (an email
    address is preferred).
  • Include the following statement: “I have a good-faith belief that use of the
    copyrighted materials described above on the allegedly infringing web pages is not
    authorized by the copyright owner, its agent, or the law.”
  • Include the following statement: “I swear, under penalty of perjury, that the
    information in the notification is accurate and that I am the copyright owner or am
    authorized to act on behalf of the owner of an exclusive right that is allegedly
    infringed.”
  • Sign the paper.

Send the written communication to:
International Children’s Heart Foundation
80 Monroe Ave., Suite G-1
Memphis, TN 38103
Attn: Terry Carter, Executive Director

Required by Law

We may disclose information provided by you if we are legally required to do so, such as by
court order or subpoena.

Security

We have adopted what we consider to be reasonable security measures to protect against the
loss, theft, misuse and alteration of information collected through our website. For optimum
security measures we utilize 256 bit SSL Encryption. However, if you are concerned about the
security of the Internet or our website, we suggest that you not provide this information.

Corrections/Updates

If you are a member and there is information about you on our website which needs to be
corrected or updated, please feel free to email us or write us at 80 Monroe Ave., Suite G-1,
Memphis, TN 38103; Attn: Communications Director.

Contacting our Website

If you have any questions about this Privacy Policy, the practices of our website, your dealings
with our website, or anyone who desires to be removed from future communications please
feel free to email us or write us at 80 Monroe Ave., Suite G-1, Memphis, TN 38103;
Attn: Communications Director.

Changes to Privacy Policy Statement

With the ever-changing environment of the Internet and to maintain our ability to improve the
quality and safety of our website, we reserve the right to change this Privacy Policy at any time.
In the event we make any material changes to our Privacy Policy, we will notify you by updating
the Policy’s Effective Date and indicating the previous effective date. As you use our website,
we encourage you to periodically check back with this Privacy Policy for changes that we may
make. Your continued use of our website will constitute your agreement to any changes we
make. If you do not agree with a change, please refrain from using our website.

Thank you!

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